Patient and Researcher: Coming together to achieve success

BDRFPatient Liaison Group and Bowel Disease Research Foundation

A session organised by the Patient Liaison Group (PLG) of the ACPGBI in collaboration with the Bowel Disease Research Foundation (BDRF), ACPGBI’s own charity and research arm.

The session offers a patient perspective and understanding of the role and purpose of the PLG and the role of Patient and Public Involvement (PPI) in research. It will concentrate on how PPI involvement can help clinicians make a success of their research application.

Date: Wednesday 5 July 2017
Venue:
 Bay View Suite
Chair:  Robert Arnott (UK) Deputy Chair of the ACPGBI  PLG, and Secretary and Trustee of the BDRF

Programme

Time Event
11:00 – 11:05 Chairman’s Opening Remarks and Presentation of the ACPGBI/BDRF Patient Champion Award 
11:05 – 11:15 The Needs of a Researcher and PPI
Nicola Fearnhead (UK) Chair of the ACPGBI Research and Audit Committee
11:15 – 11:30 Understanding the Patient Experience
Azmina Verjee (UK) Member of the ACPGBI Patient Liaison Group, and Trustee of the BDRF and Crohn’s and Colitis UK
11:30 – 11:45 Counselling Patients
Jenny Pipe (UK) Member of the ACPGBI Patient Liaison Group and Trustee and was an Executive Committee Member of the Ileostomy Association
11:45 – 12:00  The Role of a Patient Liaison Group and Recruiting Patient Representatives
Jo Church (UK) Chair of the ACPGBI Patient Liaison Group
12:00 – 12:40  What can we do for you?
Short presentations by:
Beating Bowel Cancer: Judith Brodie and Charlotte Dawson
Bowel Cancer UK: Lisa Wilde
Colostomy Association: Sarah Squire
Crohn’s and Colitis UK: Wendy Edwards and Kate James
IA: Anne Demick
Pelican: Mit Dattani
12:40 – 13:00 Question & Answer Session and Discussion
Allowing participants to express questions and their views about what they think about the role of PPI and the PLG – what it should deliver and how patients can become involved
13:00 Reminder to complete questionnaires provided
Close of session